24 Aug 2013
My doctors have got a RAD new idea...
Hello my lovely readers. How are you all? I hope you are enjoying the bank holiday weekend. I bet you are all wondering what I have been up to? Well let me fill you in…
My wounds have been healing nicely which is really great. I still have a couple of dressings on but it won’t be long until I am dressing free (*I hope) and finally able to have a bath. I also have a lot more energy that I have been putting to good use by going for some nice walks in the sunshine. I had a dose of Herceptin at the hospital that went fine and I have done the odd bit of writing. As you can see I haven’t really had a very eventful week, well I hadn’t until yesterday. Yesterday I had an appointment with my oncologists. This appointment lasted nearly and hour and a half. In this appointment I was told I would need radiotherapy. EURGH. This was not part of the plan. I thought I was going to avoid being zapped. It turns out the universe had other ideas.
As if this latest blow wasn’t enough to ruin my week I then got told that my course of radio would last for five weeks. Most people are treated for three weeks but I, being the special person I am, get to have an extra two weeks because guess what I AM SO YOUNG (*if one more doctor tells me this I think I might spontaneously combust). Seriously I do realise that I was pretty unlucky to get cancer at my age I don’t need doctors to remind me of this too. My bleedin' age has a lot to answer for you know, it often means I get the bum end of the deal. I was given the strongest chemo and the most radical surgery so I probably should have guessed radiotherapy would be no different. Silly me thinking I had gotten away without having any.
SO on hearing the action plan I made a deal with my Docs, I told them that they had to wait until after I had been to the Cosmo Blog Awards before they could start frying me. I reckon that is only fair don’t you? It means my wounds have a bit longer to fully heal and I get to have a good few more weeks of feeling normal and having some fun before my energy gets temporarily zapped away from me again. If I am honest the thing that is bumming me out the most about this news is the fact that I won’t be able to have a hot bath during and for a little while after the treatment. I still haven’t had a bath since the day before my surgery and I MISS THEM. It seems cruel that not long after I am finally able to have a bath they will once again be taken away from me. Having radio also means I get to have my first tattoo (*sorry Snoop Doggy Rob, but it is strictly for medical reasons only)! It will be a couple of tiny dots on my chest and under my arm but hey it’s a tattoo all the same!
You probably want to know why the hospital have changed their minds about giving me radiotherapy. There was a slight mix up in the beginning and I should never have been told that I wasn’t going to need it. Unfortunately my oncologist was away when I was deciding about surgery and so my surgeon consulted with other doctors and wires got crossed. I had been told radio could wreck my reconstruction results so when I was told that I wouldn’t need it I decided to have the big op, get it all done at once and reduce my scarring. After surgery I had an appointment with my actual oncologist and he started to talk to me about radio. I told him that I was told I wouldn’t need it and he wasn’t impressed. He said he would talk to some other specialists and then make a decision.
My oncology team have now decided that because my original tumour (Kenneth) was so ‘naughty’ (AKA aggressive) and chemo didn’t completely kill him, there may be a few naughty cells left. Therefore they want to be safe and give me strong treatment. They also never found out for sure that it hadn’t spread to my nodes so they want to zap them too! I am all for being safe and so although this is in no way the decision I wanted I understand the need for it. Like most cancer treatments there are some negatives to radio, these include the fact that it may very well ruin the great cosmetic result my surgeon worked so hard to achieve and it will probably make me very tired both during treatment and for a while afterwards. BUT HEY I’ve been through worse so although this is a bit of a pain I’m hoping I’ll be able to handle it. I think that really my doctors just like me so much they want to see me more ;-).
So there you go, that’s what has been happening in my life recently. I didn’t want to have radio, I thought I was finished with the nasty bits of my treatment and I was looking forward to finally being able to escape from the hospital for a while. Now I have to spend a whole lot more time there but I would rather spend time there now than have to spend time there again later on in life! The two hours of driving everyday will be a pain and any holiday plans I had have to be put on hold for now BUT I still get to go to the Blog Awards AND I can hopefully have a lot of fun now whilst there is still (*fingers crossed) the odd bit of sunshine left in the UK.
I completely agree with Dolly Parton who once said "the way I see it, if you want the rainbow, you gotta put up with the rain".
Love you long time. X